Yours, mine, or ours: Cautions about LRT

Wendy Elizabeth Bonython*, Bruce Baer Arnold

*Corresponding author for this work

Research output: Contribution to journalComment/debateResearchpeer-review

1 Citation (Scopus)

Abstract

[Extract] We appreciate the opportunity to present some further thoughts on the libertarian right to test initially proposed by Loi, and hope these additional comments will further inform debate about this critical emerging technology. Loi’s important argument is that individuals possess a prima facie libertarian right to test their genomes and that regulatory intervention restricting genetic testing must be justified by those proposing regulation. Our position is that the onus of justifying regulation is reversed. The risk to others whose genomic information is shared with the individual is potentially significant enough to warrant prima facie regulatory intervention, including protection against misuse of genetic information derived from those tests, not just against the individual tested but also against those who for reasons of common familial ancestry are also susceptible to misuse. Testing an individual’s genome does not merely reveal information about that individual; it reveals, or renders reasonably inferable, information about the genomes of close relatives due to the commonality of genomic DNA within families.
Original languageEnglish
Pages (from-to)791-792
Number of pages2
JournalJournal of Medical Ethics
Volume44
Issue number11
DOIs
Publication statusPublished - 1 Nov 2018
Externally publishedYes

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