Uptake and implementation of Advance Care Planning in Australia: Findings of key informant interviews

Joel J. Rhee*, Nicholas A. Zwar, Lynn A. Kemp

*Corresponding author for this work

Research output: Contribution to journalReview articleResearchpeer-review

55 Citations (Scopus)

Abstract

Objective. Advance Care Planning (ACP) has an important role in enhancing patient autonomy and guiding end-of-life care. However, there is low uptake of ACP and evidence that advance care plans are often not implemented. We explored these issues in interviews with expert clinicians and representatives of key stakeholder organisations with interest in end-oflife care. Method. Qualitative descriptive study of semi-structured telephone interviews with 23 participants. Results. Participants thought that the low uptake of ACP in Australia is a result of inadequate awareness, societal reluctance to discuss end-of-life issues, and lack of health professionals' involvement in ACP. Problems in implementation of advance care plans were thought to be a result of problems in accessing ACP documents; interpreting written documents; making binding decisions for future unpredictable situations; and paternalistic attitudes of health professionals and families. Participants had different perspectives on how advance care plans should be implemented, with some believing in strict implementation, whereas others believed in a more flexible approach. Implications. Low uptake and poor implementation of advance care plans may be addressed by (1) increasing community awareness; (2) encouraging health professional involvement; and (3) system-wide implementation of multifaceted interventions.Apatient-centred approach to ACP is required to resolve the differences in views on how advance care plans should be implemented.

Original languageEnglish
Pages (from-to)98-104
Number of pages7
JournalAustralian Health Review
Volume36
Issue number1
DOIs
Publication statusPublished - 5 Mar 2012
Externally publishedYes

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