RWD99 Assessing the Socioeconomic Impact of Duchenne Muscular Dystrophy on Carer's Life in Australia: A Cross-sectional Study

Leonard Lee; Arun Jones; Melinda Spencer; Daniel Tan; Hansoo Kim

doi:10.1016/j.vhri.2025.101328

RWD99 Assessing the Socioeconomic Impact of Duchenne Muscular Dystrophy on Carer's Life in Australia: A Cross-sectional Study

Leonard Lee
, Arun Jones
, Melinda Spencer
, Daniel Tan
, Hansoo Kim

Research output: Contribution to journal › Meeting Abstract › Research › peer-review

Abstract

This study aimed to provide real-world evidence on the impact of Duchenne muscular dystrophy (DMD) on caregivers in Australia, with a focus on patient-reported outcome measures and severity of disease.

Original language	English
Pages (from-to)	S9-S9
Number of pages	1
Journal	Value in Health Regional Issues
Volume	49
Issue number	Supplement 1
DOIs	https://doi.org/10.1016/j.vhri.2025.101328
Publication status	Published - Oct 2025
Externally published	Yes
Event	ISPOR Real-World Evidence Summit 2025: Through the Lens of Asia Pacific - Tokyo, Japan Duration: 28 Sept 2025 → 30 Sept 2025 https://www.ispor.org/heor-resources/news-top/news/view/2025/09/09/ispor-real-world-evidence-summit-28-30-september-2025---tokyo--japan

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10.1016/j.vhri.2025.101328Licence: CC BY-NC-ND

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title = "RWD99 Assessing the Socioeconomic Impact of Duchenne Muscular Dystrophy on Carer's Life in Australia: A Cross-sectional Study",

abstract = "This study aimed to provide real-world evidence on the impact of Duchenne muscular dystrophy (DMD) on caregivers in Australia, with a focus on patient-reported outcome measures and severity of disease.",

author = "Leonard Lee and Arun Jones and Melinda Spencer and Daniel Tan and Hansoo Kim",

year = "2025",

month = oct,

doi = "10.1016/j.vhri.2025.101328",

language = "English",

volume = "49",

pages = "S9--S9",

journal = "Value in Health Regional Issues",

issn = "2212-1102",

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number = "Supplement 1",

note = "ISPOR Real-World Evidence Summit 2025: Through the Lens of Asia Pacific ; Conference date: 28-09-2025 Through 30-09-2025",

url = "https://www.ispor.org/heor-resources/news-top/news/view/2025/09/09/ispor-real-world-evidence-summit-28-30-september-2025---tokyo--japan",

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T1 - RWD99 Assessing the Socioeconomic Impact of Duchenne Muscular Dystrophy on Carer's Life in Australia: A Cross-sectional Study

AU - Lee, Leonard

AU - Jones, Arun

AU - Spencer, Melinda

AU - Tan, Daniel

AU - Kim, Hansoo

PY - 2025/10

Y1 - 2025/10

N2 - This study aimed to provide real-world evidence on the impact of Duchenne muscular dystrophy (DMD) on caregivers in Australia, with a focus on patient-reported outcome measures and severity of disease.

AB - This study aimed to provide real-world evidence on the impact of Duchenne muscular dystrophy (DMD) on caregivers in Australia, with a focus on patient-reported outcome measures and severity of disease.

U2 - 10.1016/j.vhri.2025.101328

DO - 10.1016/j.vhri.2025.101328

M3 - Meeting Abstract

SN - 2212-1102

VL - 49

SP - S9-S9

JO - Value in Health Regional Issues

JF - Value in Health Regional Issues

IS - Supplement 1

T2 - ISPOR Real-World Evidence Summit 2025: Through the Lens of Asia Pacific

Y2 - 28 September 2025 through 30 September 2025

ER -

RWD99 Assessing the Socioeconomic Impact of Duchenne Muscular Dystrophy on Carer's Life in Australia: A Cross-sectional Study

Abstract

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