Privacy, Personhood, and Property in the Age of Genomics

Wendy Elizabeth Bonython, Bruce Baer Arnold

Research output: Contribution to journalArticleResearchpeer-review

2 Downloads (Pure)

Abstract

Revolutions in genetic technology have heralded the age of population-scale genomic metadata. This article analyzes the tensions and gaps between traditional conceptions of personhood and international legal responses to a person’s right over disembodied data obtained from his/her body. The opportunities for breakthroughs in healthcare by interrogating population-scale genomic databases are accompanied by questions about privacy, property, dignity, and the nature of information regulation in a global economy. This article highlights instances where law and policy makers have grappled with these challenges, and foreshadows some emerging future challenges. It also highlights differences between jurisdictions, and calls for greater global participation in the development of a coherent framework, rather than continued reliance on a small number of stakeholders, to develop that framework.
Original languageEnglish
Pages (from-to)377-412
Number of pages36
JournalLaws
Volume4
Issue number3
DOIs
Publication statusPublished - 2015
Externally publishedYes

Fingerprint

privacy
jurisdiction
stakeholder
regulation
participation
economy
human being
Law

Cite this

Bonython, Wendy Elizabeth ; Arnold, Bruce Baer. / Privacy, Personhood, and Property in the Age of Genomics. In: Laws. 2015 ; Vol. 4, No. 3. pp. 377-412.
@article{6770dac1f9cc4076aba6dccde9d02ead,
title = "Privacy, Personhood, and Property in the Age of Genomics",
abstract = "Revolutions in genetic technology have heralded the age of population-scale genomic metadata. This article analyzes the tensions and gaps between traditional conceptions of personhood and international legal responses to a person’s right over disembodied data obtained from his/her body. The opportunities for breakthroughs in healthcare by interrogating population-scale genomic databases are accompanied by questions about privacy, property, dignity, and the nature of information regulation in a global economy. This article highlights instances where law and policy makers have grappled with these challenges, and foreshadows some emerging future challenges. It also highlights differences between jurisdictions, and calls for greater global participation in the development of a coherent framework, rather than continued reliance on a small number of stakeholders, to develop that framework.",
author = "Bonython, {Wendy Elizabeth} and Arnold, {Bruce Baer}",
year = "2015",
doi = "10.3390/laws4030377",
language = "English",
volume = "4",
pages = "377--412",
journal = "Laws",
issn = "2075-471X",
publisher = "MDPI",
number = "3",

}

Privacy, Personhood, and Property in the Age of Genomics. / Bonython, Wendy Elizabeth; Arnold, Bruce Baer.

In: Laws, Vol. 4, No. 3, 2015, p. 377-412.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - Privacy, Personhood, and Property in the Age of Genomics

AU - Bonython, Wendy Elizabeth

AU - Arnold, Bruce Baer

PY - 2015

Y1 - 2015

N2 - Revolutions in genetic technology have heralded the age of population-scale genomic metadata. This article analyzes the tensions and gaps between traditional conceptions of personhood and international legal responses to a person’s right over disembodied data obtained from his/her body. The opportunities for breakthroughs in healthcare by interrogating population-scale genomic databases are accompanied by questions about privacy, property, dignity, and the nature of information regulation in a global economy. This article highlights instances where law and policy makers have grappled with these challenges, and foreshadows some emerging future challenges. It also highlights differences between jurisdictions, and calls for greater global participation in the development of a coherent framework, rather than continued reliance on a small number of stakeholders, to develop that framework.

AB - Revolutions in genetic technology have heralded the age of population-scale genomic metadata. This article analyzes the tensions and gaps between traditional conceptions of personhood and international legal responses to a person’s right over disembodied data obtained from his/her body. The opportunities for breakthroughs in healthcare by interrogating population-scale genomic databases are accompanied by questions about privacy, property, dignity, and the nature of information regulation in a global economy. This article highlights instances where law and policy makers have grappled with these challenges, and foreshadows some emerging future challenges. It also highlights differences between jurisdictions, and calls for greater global participation in the development of a coherent framework, rather than continued reliance on a small number of stakeholders, to develop that framework.

U2 - 10.3390/laws4030377

DO - 10.3390/laws4030377

M3 - Article

VL - 4

SP - 377

EP - 412

JO - Laws

JF - Laws

SN - 2075-471X

IS - 3

ER -