Patient reported experience measures in paediatrics: A scoping review

Francesca Avidan, Susan Brandis

Research output: Contribution to journalMeeting AbstractResearchpeer-review

Abstract

Introduction:
The WFOT is concerned with quality performance within the profession, prompting the development of the Quality Evaluation Strategy Tool [QUEST], with patient experience as an integral component. Paediatric services globally are increasingly acknowledging the importance of delivering patient-centred care for improvement in all quality dimensions. Patient-reported experience measures [PREMs] capture experiences with care received and should recognise the subjective nature of experience from both child and carer perspectives. Currently, no PREMs have been identified for global use within paediatric occupational therapy.

Objective:
To identify different PREMs used with paediatric patients, analyse characteristics, and synthesise findings relevant to occupational therapy, supporting the use of QUEST.

Methods:
A systematic search of Medline, Embase, Cochrane, CINAHL, and PsycINFO was conducted (inception to June 2024) following PRISMA-ScR guidelines. Articles are being screened by two independent reviewers. Extracted data will be synthesised inductively, tabulating PREMs by geography, type, domains, and characteristics.

Results:
The initial search identified 19,907 articles after removing duplicates. To date, 2451 have been screened, with 133 awaiting full-text review. Final results are expected in December 2024.

Conclusions:
Preliminary results identified a broad range of existing PREMs across diverse practice settings and geographic locations. Despite occupational therapy's characteristic priority for holistic and patient-centred care, limited field-specific literature was identified. The significant heterogeneity in terminology complicated study selection and highlighted a need to streamline definitive terminology to ensure accuracy in future research and consistency in practice. Findings are relevant to inform care improvement and aid selection and operational use of PREMs.
Original languageEnglish
Pages (from-to)82-82
Number of pages1
JournalAustralian Occupational Therapy Journal
Volume72
Issue numberS1
DOIs
Publication statusPublished - 23 Jun 2025
EventOccupational Therapy Australia 31st National Conference and Exhibition 2025 - Adelaide Conference Centre, Adelaide, Australia
Duration: 25 Jun 202527 Jun 2025
Conference number: 31
https://www.otausevents.com.au/otaus2025

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