Living with diabetes: Rationale, study design and baseline characteristics for an Australian prospective cohort study

Maria Donald, Jo Dower, Robert Ware, Bryan Mukandi, Sanjoti Parekh, Christopher Bain

Research output: Contribution to journalArticleResearchpeer-review

26 Citations (Scopus)

Abstract

BACKGROUND: Diabetes mellitus is a major global public health threat. In Australia, as elsewhere, it is responsible for a sizeable portion of the overall burden of disease, and significant costs. The psychological and social impact of diabetes on individuals with the disease can be severe, and if not adequately addressed, can lead to the worsening of the overall disease picture. The Living With Diabetes Study aims to contribute to a holistic understanding of the psychological and social aspects of diabetes mellitus.

METHODS/DESIGN: The Living With Diabetes Study is a 5-year prospective cohort study, based in Queensland, Australia. The first wave of data, which was collected via a mailed self-report survey, was gathered in 2008, with annual collections thereafter. Measurements include: demographic, lifestyle, health and disease characteristics; quality of life (EQ-5D, ADDQoL); emotional well-being (CES-D, LOT-R, ESSI); disease self-management (PAM); and health-care utilisation and patient-assessed quality of care (PACIC). 29% of the 14,439 adults who were invited to participate in the study agreed to do so, yielding a sample size of 3,951 people.

DISCUSSION: The data collected by the Living With Diabetes Study provides a good representation of Australians with diabetes to follow over time in order to better understand the natural course of the illness. The study has potential to further illuminate, and give a comprehensive picture of the psychosocial implications of living with diabetes. Data collection is ongoing.

Original languageEnglish
Pages (from-to)8
JournalBMC Public Health
Volume12
DOIs
Publication statusPublished - 5 Jan 2012
Externally publishedYes

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Cohort Studies
Prospective Studies
Diabetes Mellitus
Patient Acceptance of Health Care
Psychology
Cost of Illness
Queensland
Quality of Health Care
Self Care
Disease Management
Social Change
Sample Size
Self Report
Life Style
Public Health
Quality of Life
Demography
Health
Surveys and Questionnaires
Global Health

Cite this

Donald, Maria ; Dower, Jo ; Ware, Robert ; Mukandi, Bryan ; Parekh, Sanjoti ; Bain, Christopher. / Living with diabetes : Rationale, study design and baseline characteristics for an Australian prospective cohort study. In: BMC Public Health. 2012 ; Vol. 12. pp. 8.
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Living with diabetes : Rationale, study design and baseline characteristics for an Australian prospective cohort study. / Donald, Maria; Dower, Jo; Ware, Robert; Mukandi, Bryan; Parekh, Sanjoti; Bain, Christopher.

In: BMC Public Health, Vol. 12, 05.01.2012, p. 8.

Research output: Contribution to journalArticleResearchpeer-review

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