Feasibility and Acceptability of Facilitated Advance Care Planning in Outpatient Clinics: A Qualitative Study of Patient and Caregivers Experiences

Kate H. Marshall, Diane L. Riddiford-Harland, Anne E. Meller, Gideon A. Caplan, Vasi Naganathan, John Cullen, Peter Gonski, Nicholas A. Zwar, Julie Ann O’Keeffe, Karolina Krysinska, Joel J. Rhee*

*Corresponding author for this work

Research output: Contribution to journalArticleResearchpeer-review

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Abstract

Guidelines recommend advance care planning (ACP) for people with advanced illness; however, evidence supporting ACP as a component of outpatient care is lacking. We sought to establish the feasibility and acceptability of a facilitated ACP intervention for people attending tertiary outpatient clinics. Data from 20 semi-structured interviews with patient (M = 79.3 ± 7.7, 60% male) and caregiver (M = 68.1 ± 11.0, 60% female) participants recruited as part of a pragmatic, randomized controlled trial (RCT) were analyzed using qualitative descriptive methodology. Patients were randomized to intervention (e.g., facilitated support) or control (e.g., standard care). Intervention patients expressed high satisfaction, reporting the facilitated ACP session was clear, straightforward, and suited to their needs. Intervention caregivers did not report any significant concerns with the facilitated ACP process. Control participants reported greater difficulty completing ACP compared to intervention participants. Embedding facilitated ACP into tertiary outpatient care appears feasible and acceptable for people with advanced illnesses.

Original languageEnglish
Pages (from-to)339-348
Number of pages10
JournalJournal of Applied Gerontology
Volume43
Issue number4
DOIs
Publication statusPublished - Apr 2024

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