Abstract
To investigate views, determinants and barriers to end‐of‐life discussions for doctors, nurses and members of the public (MoP) and their acceptability of risk prediction tools.
Methods
Concurrent surveys of 360 doctors and nurses and 497 MoP.
Results
Sixty per cent of clinicians reported high confidence in initiating end‐of‐life discussions, and 55.8% regularly engaged in them. Barriers to end‐of‐life communication reported by clinicians were uncertainty on the likely time to death (44.7%) and family requests to withhold information from patients (44.2%). By contrast, most (92.8%) MoP wanted information about life expectancy; 89.9% wanted involvement in treatment decisions if the likelihood of death was high; and 23.8% already had an advance care directive.
Conclusions
A dissonance exists between doctor/nurses perception of older peoples’ preference for receiving prognostic information and the public desire for involvement in decision‐making at the end of life. As public attitudes change, strategies for greater involvement of patients in shared end‐of‐life planning are warranted.
| Language | English |
|---|---|
| Journal | Australasian Journal on Ageing |
| DOIs | |
| Publication status | E-pub ahead of print - 13 Mar 2019 |
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Funder Acknowledgement
This research was supported by the NHMRC Program funding scheme.Cite this
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Dissonance on perceptions of end‐of‐life needs between health‐care providers and members of the public: Quantitative cross‐sectional surveys. / Cardona, Magnolia; Lewis, Ebony T.; Shanmugam, Shantiban; Nicholson, Margaret; Williamson, Margaret; Hanly, Laura; Hillman, Kenneth.
In: Australasian Journal on Ageing, 13.03.2019.Research output: Contribution to journal › Article › Research › peer-review
TY - JOUR
T1 - Dissonance on perceptions of end‐of‐life needs between health‐care providers and members of the public: Quantitative cross‐sectional surveys
AU - Cardona, Magnolia
AU - Lewis, Ebony T.
AU - Shanmugam, Shantiban
AU - Nicholson, Margaret
AU - Williamson, Margaret
AU - Hanly, Laura
AU - Hillman, Kenneth
PY - 2019/3/13
Y1 - 2019/3/13
N2 - ObjectiveTo investigate views, determinants and barriers to end‐of‐life discussions for doctors, nurses and members of the public (MoP) and their acceptability of risk prediction tools.MethodsConcurrent surveys of 360 doctors and nurses and 497 MoP.ResultsSixty per cent of clinicians reported high confidence in initiating end‐of‐life discussions, and 55.8% regularly engaged in them. Barriers to end‐of‐life communication reported by clinicians were uncertainty on the likely time to death (44.7%) and family requests to withhold information from patients (44.2%). By contrast, most (92.8%) MoP wanted information about life expectancy; 89.9% wanted involvement in treatment decisions if the likelihood of death was high; and 23.8% already had an advance care directive.ConclusionsA dissonance exists between doctor/nurses perception of older peoples’ preference for receiving prognostic information and the public desire for involvement in decision‐making at the end of life. As public attitudes change, strategies for greater involvement of patients in shared end‐of‐life planning are warranted.
AB - ObjectiveTo investigate views, determinants and barriers to end‐of‐life discussions for doctors, nurses and members of the public (MoP) and their acceptability of risk prediction tools.MethodsConcurrent surveys of 360 doctors and nurses and 497 MoP.ResultsSixty per cent of clinicians reported high confidence in initiating end‐of‐life discussions, and 55.8% regularly engaged in them. Barriers to end‐of‐life communication reported by clinicians were uncertainty on the likely time to death (44.7%) and family requests to withhold information from patients (44.2%). By contrast, most (92.8%) MoP wanted information about life expectancy; 89.9% wanted involvement in treatment decisions if the likelihood of death was high; and 23.8% already had an advance care directive.ConclusionsA dissonance exists between doctor/nurses perception of older peoples’ preference for receiving prognostic information and the public desire for involvement in decision‐making at the end of life. As public attitudes change, strategies for greater involvement of patients in shared end‐of‐life planning are warranted.
UR - http://www.scopus.com/inward/record.url?scp=85062987210&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/1054146
U2 - 10.1111/ajag.12630
DO - 10.1111/ajag.12630
M3 - Article
JO - Australian journal on ageing
T2 - Australian journal on ageing
JF - Australian journal on ageing
SN - 1440-6381
ER -