Development and pilot testing of an electronic guide incorporating patient values and prognostic information in preparation for older people’s decision-making near the end of life

Magnolia Cardona, Ebony T. Lewis, Alex Bannach-Brown, Genevieve Ip, Janice Tan, Eyza Koreshe, Joshua Head, Jin Jie Lee, Shirley Rangel, Lorraine Bublitz, Connor Forbes, Isabella Maréchal-Ross, Nikita Bathla, Ruth Kusnadi, Peter Brown, Hatem Alkhouri, Maree Ticehurst, Nigel Lovell

Research output: Other contributionDiscipline Preprint RepositoryResearch

Abstract

This is a preprint, a preliminary version of a manuscript that has not completed peer review at a journal.

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Background
To develop an electronic resource, called Communicating Health Alternatives Tool (CHAT) that was compatible with hospital medical records software to facilitate preliminary patient-centered decision-making across health settings for frail older adults with progressive chronic disease.

Methods
Mixed methods including literature review; user-directed specifications; web-based interface development with authentication, authorisation, and secure cloud services; clinician and consumer co-design, iterative user testing; and developer integration of feedback.

Results
An internet-based conversation guide to facilitate clinician-led advance care planning was co-developed covering screening for short-term risk of death, patient values and preferences, and treatment choices for chronic kidney disease and dementia. Printed summary of such discussion could be used to begin the process in hospital or community health services. Clinicians, patients, and caregivers were generally accepting of its contents and format and supported its use in routine clinical practice.

Conclusion
CHAT is anticipated to enhance clinicians’ confidence in initiating these sensitive but important discussions with their older patients near end of life. CHAT is available to health services for implementation in effectiveness trials of patient-centered care to determine whether the interaction and documentation leads to formal decision-making, goal-concordant care, and subsequent reduction of unwanted treatments at the end of life.
Original languageEnglish
PublisherResearch Square
DOIs
Publication statusPublished - 7 Mar 2022

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