Aphasia friendly written health information: Content and design characteristics

Tanya A Rose, Linda E Worrall, Louise M Hickson, Tammy C Hoffmann

Research output: Contribution to journalArticleResearchpeer-review

57 Citations (Scopus)

Abstract

People with aphasia need communicatively accessible written health information. Healthcare providers require knowledge of how to develop printed education materials (PEMs) in formats that people with aphasia prefer and can read. This study aimed to explore formatting characteristics considered to be barriers and facilitators to reading PEMs. Semi-structured in-depth interviews were conducted with 40 adults with aphasia who were selected using maximum variation sampling across aphasia severity, reading ability, and time post-stroke. Participants were shown stroke and aphasia PEMs obtained from the recruiting stroke services, asked to rank them from most liked to least liked, and comment on factors that made the PEMs easier and harder to read. The majority of participants ranked the aphasia friendly stroke (56.4%, n = 22) and aphasia (87.2%, n = 34) PEMs as most liked. Forty-five facilitator and 46 barrier codes were identified using qualitative content analysis and grouped into two categories; (1) content characteristics and (2) design characteristics. Findings support many of the recommendations found within the literature for developing best practice PEMs and accessible information for other patient groups. Routine consideration of the facilitators and barriers identified will contribute to making written information more accessible to people with aphasia.

Original languageEnglish
Pages (from-to)335-47
Number of pages13
JournalInternational Journal of Speech-Language Pathology
Volume13
Issue number4
DOIs
Publication statusPublished - Aug 2011
Externally publishedYes

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Aphasia
Health
Education
Stroke
Reading
Practice Guidelines
Health Personnel
Interviews

Cite this

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title = "Aphasia friendly written health information: Content and design characteristics",
abstract = "People with aphasia need communicatively accessible written health information. Healthcare providers require knowledge of how to develop printed education materials (PEMs) in formats that people with aphasia prefer and can read. This study aimed to explore formatting characteristics considered to be barriers and facilitators to reading PEMs. Semi-structured in-depth interviews were conducted with 40 adults with aphasia who were selected using maximum variation sampling across aphasia severity, reading ability, and time post-stroke. Participants were shown stroke and aphasia PEMs obtained from the recruiting stroke services, asked to rank them from most liked to least liked, and comment on factors that made the PEMs easier and harder to read. The majority of participants ranked the aphasia friendly stroke (56.4{\%}, n = 22) and aphasia (87.2{\%}, n = 34) PEMs as most liked. Forty-five facilitator and 46 barrier codes were identified using qualitative content analysis and grouped into two categories; (1) content characteristics and (2) design characteristics. Findings support many of the recommendations found within the literature for developing best practice PEMs and accessible information for other patient groups. Routine consideration of the facilitators and barriers identified will contribute to making written information more accessible to people with aphasia.",
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Aphasia friendly written health information : Content and design characteristics. / Rose, Tanya A; Worrall, Linda E; Hickson, Louise M; Hoffmann, Tammy C.

In: International Journal of Speech-Language Pathology, Vol. 13, No. 4, 08.2011, p. 335-47.

Research output: Contribution to journalArticleResearchpeer-review

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